The Cystic Fibrosis Trust
The Cystic Fibrosis Trust is the UK's only national charity dedicated to all aspects of Cystic Fibrosis (CF). It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with Cystic Fibrosis.
The Cystic Fibrosis Trust funds medical and scientific research aimed towards understanding, treating and curing Cystic Fibrosis. It also aims to ensure that people with CF receive the best possible care and support in all aspects of their lives.
The CF Trust is committed to raising a further funding for pioneering research into gene therapy with the aim of correcting the basic genetic defect.
The CF Trust has established branches and groups throughout the UK to raise funds.
Their support service provides advice and information for those affected by CF, their families and their carers.
The CF Trust also campaign to improve the clinical and social care of those affected by CF, as well as raising public awareness of the condition.
The Cystic Fibrosis Trust Support Service was established in 1989 to provide essential support to people with CF and their families. This support begins at diagnosis and continues through adolescence to adulthood. The CF Trust provides confidential helplines for general enquiries about CF, benefits advice and welfare grants.
Tel: 0845 859 1000
Expert Patient Advisers
The Cystic Fibrosis Trust Patient Advocate Scheme has evolved into that of Expert Patient Advisers. Their remit is broad and varied, continuing with much of their previous role as Advocates, but with more emphasis on becoming experts in the care that people with CF should expect - and using their knowledge to influence anyone who is involved with the commissioning or provision of care and services for people with Cystic Fibrosis.
Welfare Grants Helpline
The Cystic Fibrosis Trust is able to help families and CF adults in many ways including offering financial help and advice and through its own small grants scheme for those experiencing particular difficulty at a time of stress or crisis relating to Cystic Fibrosis.
Most areas of need will be considered however our funds are limited and so we are unable to help with debts or ongoing expenses (such as driving lessons or the cost of running a car) or with major projects such as home improvements/maintenance or purchasing a car.
We will do our best to meet requests unlikely to be considered by any other organisation, for example:
* Assistance to purchase household items directly relating to Cystic Fibrosis
* Providing help with the cost of a necessary break after a period of stress or crisis
* Paying for help in the home which may mean keeping the person with CF out of hospital
* Financial assistance for those setting up home for the first time
* Help with costs during hospitalisation
* Funding a young adult's first annual prescription prepayment certificate
* Help with funeral costs