Multiple Sclerosis - and no support!!!
I am a lady, fifty years old, living in the Midlands. I was only diagnosed in April 2006 but have had problems for years.
As I also have some severe phobias, I find myself being denied support because as the MS nurse 'told' me, 'well, if you refuse to go out ..'. I don't bother phoning them again, obviously!
My husband left me a year ago and I need to sell up and somehow move. I can afford to rent, but find myself being turned down because I have a dog; the cleanest dog around! I have asked landlords to come and look at this house, no-one bothers, I ask for some support, they don't phone back. So I don't bother anyone again.
If I could find somewhere nice to rent, things wouldn't seem so bad. I don't know many people as I can't easily get out, and I can't work, (ex private house cook) so feel very isolated and wasted.
There is a 'person' in here, somewhere!! But officialdom 'can't' seem to advise or help.
It's a good job I have a bit of my sense of humour left, and my dog, of course!!
I do get very depressed about the situation I find myself in, mind you, is that surprising I have often come up with possible business ideas, not been able to 'see them through' then see them 'being done' in the newspapers, or on the TV.
I KNOW I am not stupid but I find the few people I see think I am. I often wonder why they are so cruel, usually it is because they 'don't like' illness. Weird lot!!!
I do try to see myself as 'my sort of me' and not think about my problems. But I can't keep that up for long as my MS (secondary progressive) is VERY progressive!!
Well, as long as I can feed the mutt and not fall over too much, I suppose that is positive!! I really find it difficult to keep up a cheerful outlook when it is all very painful and uncertain. I do get scared and also just cannot believe it is 'ok' to be left like this.
I am only told to take my painkillers and muscle relaxants. I am sorry about sounding like a miserable old bag, I try not to be but am really stuck and can't find a way out.